Caregiver Support Resources

http://www.caregiving.org/pdf/resources/CFC.pdf
Care for the Family Caregiver: A Place to Start
Family caregivers can download an informative booklet on how to care for relatives and loved ones.

http://www.hospicefoundation.org/pages/page.asp?page_id=171384
Caregiver's Tools: Caring for the Caregiver
Hospice Foundation of America provides caregivers with free resources such as self-assessment questionnaires on well-being, eldercare locators, caregiving handbook, and a caregiver's guide to the dying process.

http://caregivercenter.org/
Southern Caregiver Resource Center (SCRC)
SCRC helps families and communities master the challenges of caring for adults through cost-effective and prevention-oriented programs and services that address the emotional, physical, and financial needs of family caregivers.

http://www.losangelescrc.org
Los Angeles Caregiver Resource Center (LACRC)

Dedicated to the assistance and support of caregivers and their families residing in Los Angeles County and surrounding communities.

http://www.caringinfo.org/i4a/pages/index.cfm?pageid=1
Caring Connections

Provides free resources and information to help people make decisions about end-of-life care and services before a crisis. Also offers free downloadable medical power of attorney documents and state-specific living wills.

http://www.carepages.com
Care Pages

Care Pages are free patient websites for everyone coping with illness where you can share your story, meet others, and get support. Care Pages websites are free and help to connect friends and families during a health challenge.

http://www.usa.gov/Topics/Seniors/EndofLife.shtml
End-of-Life Issues

Provides free resources on advance directives, hospice, funerals, and more.

http://www.medicare.gov/campaigns/caregiver/caregiver.html
Considering Hospice Care

Basic information provided by Medicare about hospice care, Medicare's role in paying for it, where to find it, planning for the future, and taking care of yourself.

http://www.hospicenet.org/html/medical_leave.html
Your Rights Under the Family and Medical Leave Act (FMLA) of 1993

Learn about FMLA that provides certain employees with up to 12 weeks of unpaid, job-protected leave per year. It also requires that their group health benefits be maintained during the leave.

http://www.agingwithdignity.org
Aging with Dignity
Aging with Dignity is a national non-profit organization with a mission to affirm and safeguard the human dignity of individuals as they age and to promote better care for those near the end of life. The life and work of Mother Teresa of Calcutta served as the inspirational foundation of Aging with Dignity.

http://www.centerforloss.com
Center for Loss and Transition

http://www.familycaregiving101.org
Family Caregiving 101
The site is designed to provide caregivers with the basic tools, skills, and information that caregivers need to protect their own physical and mental health while they provide high quality care for their loved one.

http://www.hospicefoundation.org
Hospice Foundation of America (HFA)
HFA provides leadership in the development and application of hospice and its philosophy of care with the goal of enhancing the U.S. health care system and the role of hospice within it.

http://www.caregiving.org
National Alliance for Caregiving (NAC)
The NAC is a nonprofit coalition of national organizations, dedicated to being the foremost national resource on family caregiving to improve the quality of life for families and care recipients.

http://www.nfcacares.org
National Family Caregivers Association (NFCA)
The NFCA educates, supports, empowers, and speaks up for the more than 65 million Americans who care for loved ones with a chronic illness or disability or the frailties of old age. NFCA reaches across the boundaries of diagnoses, relationships and life stages to help transform family caregivers' lives by removing barriers to health and well being.

http://www.nhpco.org
National Hospice and Palliative Care Organization (NHPCO)
The NHPCO is the largest national nonprofit membership organization representing hospice and palliative care programs and professionals, committed profoundly enhancing quality of life for people dying in America and their loved ones.

http://www.nationalhospicefoundation.org
National Hospice Foundation (NHF)
The NHF works in partnership with the NHPCO, to improve care at the end of life throughout the United States. They raise funds from individuals, foundations, and corporations to fund programs that make a difference in the lives of the patients and families served by NHPCO's membership of hospice and palliative care providers.




Disease Specific Resources ALS

http://www.alsa.org
ALS Association
ALS Association is a national not-for-profit organization providing information, research and resources for those with ALS.

http://www.alsasd.org
ALS Association, San Diego Chapter
The local chapter for the ALS Association. The site provides local events, news and patient/family services.


Alzheimer's/Dementia

http://www.alz.org/index.asp
Alzheimer's Association
National website for Alzheimer's Association, a 501(c)(3) not-for-profit organization. It provides information, education and support including Alzheimer's Association CareSourceā„¢ an online suite of resources that will help coordinate assistance from family and friends, locate senior housing, receive customized care recommendations and enhance care giving skills.

Cancer

http://www.cancer.org
American Cancer Society
A nationwide community-based voluntary health organization. Provides a wealth of research information, education, patient services and advocacy initiatives. You can enter your zip code to link to the San Diego branch of services.

http://www.cancer.gov
National Cancer Institute
Part of U.S. National Institutes of Health. This site provides broad and detailed information on all types of cancer including, testing, treatment and coping strategies.

http://www.asbestos.com
Mesothelioma Center
The Mesothelioma Center offers the most comprehensive and current information on asbestos exposure and mesothelioma. The Center collects information about this type of cancer and uses it to help people and families affected by the disease.


End-Stage Heart Disease (including COPD)

http://www.lungusa.org
American Lung Association (ALA) This is a link to ALA's "COPD Center" which provides links to support services, help on treatment and education information.

http://www.americanheart.org
American Heart Association
Website for American Heart Association with pages for patients and caregivers as well as a section on Diseases & Conditions which presents a full list.


HIV/AIDS

http://www.aids.gov
AIDS.gov Information from the U.S. Government. It has video and audio podcasts, information on treatment and care, testing and ongoing research, as well as links to other resources both domestically and globally.


Kidney Disease

http://www.nkdep.nih.gov
National Kidney Disease Education Program (NKDEP)
Provides advice about talking to your family and doctor about the disease as well as resources for more information and the latest news and events.

http://www.kidney.org/kidneydisease
National Kidney Foundation
Top-line information about the disease and kidneys in general with sections for parents and children, dialysis, nutrition and fitness. Allows you to find local offices and events by entering in your zip code.


Leukemia and Lymphoma

http://www.leukemia-lymphoma.org/hm_lls
Leukemia & Lymphoma Society (LLS)
The Leukemia & Lymphoma Society (LLS) is the world's largest voluntary health organization dedicated to funding blood cancer research, education and patient services. Since the first funding in 1954, LLS has awarded more than $600 million in research funding.


Liver Disease

http://www.liverfoundation.org
American Liver Foundation (ALF)
The ALF is a voluntary health organization and provides educational resources, a list of events going on at all the chapters, Caregiver FAQ and more.


Pancreatic Cancer

http://www.pancan.org/
Pancreatic Cancer Action Network
Pancreatic Cancer Action Network is the national organization creating hope in a comprehensive way through research, patient support, community outreach and advocacy for a cure.


Parkinson's Disease

http://www.pdf.org
Parkinson's Disease Foundation
The website of Parkinson's Disease Foundation, Inc., a New York not-for-profit corporation ("PDF"). It is a comprehensive list of websites, medical information, Q&A and an "Ask the Expert" feature regarding Parkinson's.

http://www.ninds.nih.gov/disorders/dementias/dementia
National Institute of Neurological Disorders and Stroke (NINDS)
NINDS was created by the U.S. Congress and is one of the more than two dozen research institutes and centers that comprise the National Institutes of Health (NIH). They have a link for Disorders A-Z in which they have five links for Dementia. It lists basic information, other related national organizations and publications on the subject.




Legal / Advanced Directive Documents

http://assets.aarp.org/external_sites/caregiving/multimedia/EG_AdvanceDirectives.html
Advanced Directives: Planning for the Future

Watch this video to learn about the importance of giving your family clear, written direction about your end-of-life wishes, as well as setting out the kinds of treatments you want, or don't want, and naming someone to make sure your wishes are honored.

http://agingwithdignity.org/five-wishes.php
Aging with Dignity website

Aging with Dignity provides Five Wishes, a document known as America's most popular living will, because it is written in everyday language and helps start and structure important conversations about care in times of serious illness.

http://www.caringinfo.org/i4a/pages/index.cfm?pageid=3289
Caring Connections

This website allows you to download your specific state's advance directive.

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